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November is Bladder Health awareness month and we would like to discuss with our readers a significant update to the research regarding Interstitial Cystitis / Bladder Pain Syndrome  (IC/BPS). In May 2022, the American Urological Association (AUA) released updated clinical guidelines for the diagnosis and treatment of IC/BPS. The purpose of the bladder pain syndrome treatment guideline is to provide a “clinical framework” for best practice regarding the management of patients who experience this. That includes what should and shouldn’t be done for patients, and how to avoid unnecessary or harmful interventions. The previous bladder pain syndrome treatment guidelines were released 8 years ago, in 2014. 

What is Interstitial Cystitis / Bladder Pain Syndrome anyways?

Check out some of our previous articles for definitions and how pelvic floor physical therapy can help. In this year’s update, the authors--who are made up of experts in the field--continued to include the role of pelvic floor physical therapy in treatment of patients experiencing Interstitial Cystitis or Painful Bladder Syndrome. The AUA has placed pelvic floor physical therapy under the Behavioral / Non-pharmacologic Treatments category, as we are an evidenced-based (research-approved) profession providing treatments that have proven successes for Interstitial Cystitis / Painful Bladder Syndrome. 

The guidelines suggest that Urologists (doctors that specialize in the bladder) and all medical professionals involved in the care of these patients, should include manual physical therapy techniques to patients who present with pelvic floor tenderness. The techniques that pelvic floor physical therapists use, address the common pelvic, abdominal and hip muscle trigger points, and lengthen muscle contractures. Pelvic floor physical therapy also decreases any connective tissue restriction present, such as scar tissue.

The IC/ bladder pain syndrome treatment guidelines also make an important point about the Kegel: pelvic floor strengthening exercises should be avoided. 

The above suggestions on what should and shouldn't be done for these patients were given a level of evidence strength: grade A. This means the suggestion is based on a systematic review of many high quality randomized control trials, which is considered to be the best form of clinical research design.

An important point made under this category is that “no one treatment has been effective for the majority of patients” and “acceptable symptom control may require trials of multiple therapeutic options”. The guidelines also state under this category that self-care practices and behavioral modifications should be implemented. Additionally, a nod to the role of stress in exacerbation of symptoms in this patient population, the guidelines suggest to practitioners that patients should be encouraged to implement stress management practices to improve coping techniques and manage stress-induced symptom exacerbations. Pelvic floor physical therapy also involves  pain management, education on pain neuroscience and a multimodal approach using varying modalities to further decrease bladder pain. At Femina Physical Therapy, we have Doctors of Physical Therapy specialized in Orthopedic and Pelvic Health diagnoses as we take the full body into consideration. We are not just focusing on the ‘problem area’, but how concurrent orthopedic conditions frequently overlap with pelvic health conditions, including Interstitial Cystitis / Painful Bladder Syndrome.

Recap on Updates to the IC / Bladder Pain Syndrome Treatment Guidelines: 

  • Treatment should include manual physical therapy techniques
  • Kegels: avoid pelvic floor strengthening exercises 
  • no one treatment has been effective for the majority of patients; a multimodal approach is important
  • the role of stress is important in exacerbating symptoms 
  • pain management should be included 

Additional Benefits of Pelvic Floor Physical Therapy for IC / BPS Patients

This is another area where pelvic floor physical therapy can help patients. Physical therapists, of all specialties, have the unique opportunity to see patients every week--and for long periods of time. This allows us the opportunity to work on important treatments like nervous system modulation, stress management strategies and to review bowel and bladder diaries to determine irritants or anything that contributes to symptoms, in addition to the manual and other  therapies provided in office. Pelvic floor physical therapy should treat patients from head to toe, and accounts for all surrounding segments of the body and brain that may be playing a role. Underlying bladder habits that may be contributing to the bladder pain, such as alcohol consumption, going “just in case” or hovering over public toilets to urinate and training the brain-bladder connection with urge suppression techniques are just some of the ways to manage the symptoms and are taught in pelvic floor physical therapy.

There is new research constantly being published, and unfortunately not all providers (pelvic health doctors and physical therapists alike) will be practicing in alignment with the new AUA recommendations. This is certainly not always the case, so make sure that if you believe this is something affecting you or someone you know, you can ask your provider if pelvic floor physical therapy is an option for you. Connect with us to get on the path to recovery.

References:

  1. Clemens JQ, Erickson DR, Varela NP et al: Diagnosis and treatment of interstitial cystitis/bladder pain syndrome. J Urol 2022; https://doi.org/10.1097/JU.0000000000002756.
  2. Lukban JC, Parkin JV, Holzberg AS, Caraballo R, Kellogg-Spadt S, Whitmore KE. Interstitial cystitis and pelvic floor dysfunction: a comprehensive review. Pain Med. 2001 Mar;2(1):60-71. doi: 10.1046/j.1526-4637.2001.002001060.x. PMID: 15102319.
  3. Lilius HG, Oravisto KJ, Valtonen EJ. Origin of pain in interstitial cystitis: effect of ultrasound treatment on the concomitant levator ani spasm syndrome. Scandinavian Journal of Urology and Nephrology. 1973;7(2-3):150-152. doi:10.3109/00365597309133690. 

What Our Patients Have to Say

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Testimonial by Mary L.

I started seeing Heather to treat my Interstitial Cystitis in November 2016. At this time, I was extremely miserable, in constant pain, and felt as though no one was listening or understood what was going on with my body. I have just finished my last appointment and I can honestly say that my life has completely changed for the better because of Heather and her team of PTs! I live almost completely pain free, and when I do have flare ups, I am able to treat them at home on my own. I am so grateful that this office was recommended to me a honestly cannot recommend them enough!

Read more: Testimonial by Mary L.

Testimonial by A.M.

Months after giving birth, it was difficult for me to go from a sitting or lying position up to a full standing position without feeling that I had to remain hunched over until a bit of time had passed to get fully upright. However, after taking Heather’s course, I learned exercises to get my body back to normal. She also showed me correct ways to lift and carry my son as well as put him in/take him out of the carseat and stroller. This class was really beneficial and Heather is a wonderful teacher who made me feel very comfortable.

-- A.M.

Testimonial by Julie T.

Femina PT (née Fusion Wellness & Physical Therapy) has honestly changed my life. Before receiving treatment at Femina, I was going doctor to doctor to try and find the answer to my pelvic pain. It has taken me YEARS to find someone that can help fix this. It wasn't until my gynecologist recommended your clinic that I finally felt relief. My pelvic pain is almost gone, and granted I still have a lot more to work on with Laureen (my PT), my original problem is nearly cured. I am so grateful to her.

What is even better is she gave me practical exercises to do at home that were not tedious and provided instant (and lasting) relief. Although I mainly work with Laureen, my interaction with the owner (Heather) has been great. She is very generous, kind, and committed to her business.

It hurts to know there are women out there suffering who will never know or have the opportunity to work with women like Laureen and Heather because this issue is hardly talked about and this field is so rare. I hope more doctors and physical therapists see the value in this work and can relieve more woman of their pain.

-- Julie T., 12/4/16 via Yelp!

Testimonial by M.M.

My husband and I were married for 5 years and unable to have intercourse, but I never knew why. After numerous awful experiences at doctor’s offices (where many doctors told me I “just needed to relax”), a surgery that didn’t fix the problem, and a year of owning dilators that didn’t get me anywhere, someone finally referred me to Heather for Physical Therapy. I finally had answers and information from someone who knew exactly what I was dealing with!

Read more: Testimonial by M.M.

Testimonial by S.B.

As someone who suffered the debilitating physical and emotional effects of vaginismus (as well as a complicated history of back injuries) for more than 15 years, I thought a "normal" life was just a fantasy. Then I found Heather.

Read more: Testimonial by S.B.

Testimonial by M.M.

A personal journey and testimonial from one of my patients:

My husband and I were married for 5 years before we were able to have intercourse due to my vaginismus. There was nothing traumatic in my past but for some reason, even though I wanted sex, I mentally avoided "that area" of my body and didn't even admit to myself that there was a problem for a long time, even though I was never able to put tampons in. Once I finally opened my eyes up to the fact that I had a problem, I had a surgery that was supposed to fix the issue.

Read more: Testimonial by M.M.

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