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Tarlov Cyst Physical Therapy
All About Tarlov Cysts and Treatment Options | Image Courtesy of Chuttersnap via Unsplash

Treatment Options for Tarlov Cyst: Physical Therapy

This article will go over what a Tarlov cyst is, what symptoms can arise from having a Tarlov cyst, how it is diagnosed, and common conservative and surgical treatments. 

What is a Tarlov Cyst? 

Tarlov cysts are sacral perineural cysts that consist of cerebrospinal fluid (CSF) close to the dorsal root ganglion on our sacral spine (the triangle shaped bone that connects to our tailbone). Tarlov cysts are often incidental findings on MRI’s, meaning most people with no symptoms may have Tarlov cyst(s). Paulsen, et al, looked at 500 MRIs of the lumbosacral spine and found an incidental rate of 4.6%; of which 20% were symptomatic. Approximately 1% of the cysts are large enough to cause compression, thus requiring prompt treatment.

What are the symptoms of a Tarlov Cyst? 

Some people have Tarlov cysts with symptoms, and some have Tarlov cysts with no symptoms. Depending on the size and location of the cyst, it can affect the nerve roots coming out of the spine. The most common location of the tarlov cysts is on the second sacral vertebrae. The sizes of the cysts range, on average, from 1-2 centimeters. This is a big area where very important nerves live, such as the pudendal nerve, sciatic nerve, and many others. Our pudendal nerve is responsible for sensation of our perineum (saddle region), bladder/bowel function, and volitional control of the muscles of our pelvic floor. Another big nerve is the sciatic nerve and this innervates the muscles of the back of the thighs and indirectly innervates the lower legs. Because of the location of the cyst, you can imagine that Tarlov cysts can lead to low back pain, leg pain, pelvic pain, sensory disturbances and bladder/bowel dysfunction.

Common symptoms are:

  • Low back pain 
  • leg pain 
  • pain from sitting to standing 
  • numbness/sensory dysfunction
  • Urinary urgency/urinary frequency
  • sexual dysfunction

Baker, et al. studied bladder findings in those with symptomatic Tarlov cysts and that also underwent urodynamic testing. The authors found an earlier sensation of bladder filling, involuntary detrusor (bladder muscle) contractions, urethral instability, and stress urinary incontinence. As you can see, Tarlov cysts can have quite an influence on our urogenital function. 

How are Tarlov Cysts diagnosed?

Often Tarlov cysts are diagnosed through MRI, CT, or myelogram of the lumbosacral spine. If it is suspected to be the cause of your pain/symptoms, often a CT guided percutaneous aspiration of the cyst is performed to see if short-term relief occurs, and goes into consideration as a surgical candidate. 

Treatment Options for Tarlov Cysts

Conservative treatments can include analgesic medications, non-steroid anti-inflammatory medications, and physical therapy. Physical therapy would focus on the individual symptoms, help with pain management and possibly introduce light strengthening of muscles that may have gotten weaker as a result of the cyst.

Tarlov Cyst Disease Foundation listed some wonderful general suggestions:

  • Avoid heavy lifting, straining or pulling that may increase pressure on low back 
  • ice and/or heat packs on low back 
  • minimize prolonged periods of sitting or standing (possibly apply sitting cushions that help decrease pressure on perineum).
  • avoid constipation as that can increase pressure on cyst while straining (check out our other blogs on how to help manage constipation: 
  • Pain management, including TENS

Furthermore, pelvic floor physical therapists can help with constipation, go over toileting posture and mechanics, bladder symptoms (urinary incontinence, inc. urinary frequency/urgency, or difficulty with urinating), sitting posture/strategies, standing posture/strategies and apply pain management techniques including light manual therapy and therapeutic exercises. 

SURGICAL TREATMENTS:

There are many different surgical techniques to help should conservative methods fail or symptoms worsen. Different neurosurgical techniques include: cyst fenestration, cyst shrinkage, partial excision and oversewing of cyst’s wall with or without nerve root repair, and complete excision of the cyst with the nerve root. Although surgery provides relief for many, including a significant reduction in pain, improvement in bladder/bowel function and sexual function, there can be some complications and in some circumstances, may be recurrence of cyst with a return of symptoms. Please go to tarlovcystfoundation.org to help you find a neurosurgeon that can help guide you through this journey. 

References:                   

  1. Xu J, Sun Y, Huang X, Luan W (2012) Management of Symptomatic Sacral Perineural Cysts. PLoS ONE 7(6): e39958. doi:10.1371/journal.pone.0039958 
  2. Baker M, Wilson M & Wallach S. (2018). Urogenital symptoms in women with Tarlov cysts. J Obstet Gynaecol Res 44(9): 1817-1823. doi:10.1111/jog.13711. 
  3. “FAQs.” Tarlov Cyst Disease Foundation. https://www.tarlovcystfoundation.org/faqs/
  4. Medani K, Lawandy S, Schrot R, et al. Surgical Management of symptomatic Tarlov cysts: cyst fenestration and nerve root imbrication - a single institutional experience.  J Spine Surg 2019;5(4):496-503 | https://dx.doi.org/10.21037/jss.2019.11.11 

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Testimonial by R.D., age 38

"I had a severe tear during childbirth that was not stitched together correctly and therefore healed poorly. Even after having a surgery a year later to remove the scar tissue, I was still having pain, and no one could explain why -- there was no overt 'reason' to explain the pain. I had tried other 'specialists' and even saw another physical therapist who had me do hip / leg stretches -- what a joke! I was about to give up and just 'live with it' until thankfully I kept searching online and found Heather.

Read more: Testimonial by R.D., age 38

Testimonial by Lauren B.

Femina PT (née Fusion Wellness & Physical Therapy) has been such an answer to prayer, i'm so glad I found them! I've been struggling with vaginismus my whole life, but didn't have a name for it until about 6 or 7 months ago. Even once I did have a name for it though, I didn't know where to begin in getting help. My OB/GYN had me get a set of dilators, but I couldn't even insert the smallest one by myself. Most times I tried I just ended up frustrated and in tears. I felt really alone, like I was broken and didn't have the energy to keep trying. When I got engaged a few months ago though, I realized I needed to get answers so i wasn't dreading my honeymoon.

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Testimonial by Julie T.

Femina PT (née Fusion Wellness & Physical Therapy) has honestly changed my life. Before receiving treatment at Femina, I was going doctor to doctor to try and find the answer to my pelvic pain. It has taken me YEARS to find someone that can help fix this. It wasn't until my gynecologist recommended your clinic that I finally felt relief. My pelvic pain is almost gone, and granted I still have a lot more to work on with Laureen (my PT), my original problem is nearly cured. I am so grateful to her.

What is even better is she gave me practical exercises to do at home that were not tedious and provided instant (and lasting) relief. Although I mainly work with Laureen, my interaction with the owner (Heather) has been great. She is very generous, kind, and committed to her business.

It hurts to know there are women out there suffering who will never know or have the opportunity to work with women like Laureen and Heather because this issue is hardly talked about and this field is so rare. I hope more doctors and physical therapists see the value in this work and can relieve more woman of their pain.

-- Julie T., 12/4/16 via Yelp!

Testimonial by Carolina J.

I had tried Pelvic Floor Physical Therapy before (with another PT) and I had a really bad (painful) experience. A friend of mine and fellow patient, told me about Heather, Laureen and Femina PT (née Fusion Wellness & Physical Therapy) and I decided to try again. I am so happy I did! Femina PT have, literally, changed my life. I was able to do again things I couldn't do for over 10 years!! Their bedside manners are impeccable, their knowledge and understanding make me feel comfortable to recommend this place to anyone in pain. Specially if you have Endometriosis. 100% recommended!!

-- Carolina J., 12/28/16 via Yelp!

Testimonial by J.H.

My last appointment with Heather was over 6 years ago but I still think of her every day. I don’t take for granted that I can easily get out of bed, care for my two active and busy young boys, run, play tennis, clean my house, or sit at a desk for several hours at a time. None of these tasks were easy for me before meeting Heather. Eight years ago my car was struck from behind by a tractor trailer that was estimated to have been speeding. I spent 3 years working with different PTs and Drs trying to heal and move on with my life. When I became pregnant and the hormone relaxin that “relaxes” all the joints of the body and the additional weight gain erased all my progress and I was suddenly in a lot of pain again. My OB sent me to Heather for one last try.

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Testimonial by Fritzette H.

I went to Heather after the birth of my third child. It was lucky, really, that I was referred to her, because my doctor had referred me to a surgeon for a possible hysterectomy or pelvic wall rebuild. Thankfully, I went to Heather before undergoing either surgery, she was able to fix the problem. She has studied extensively in women's health--even written a book about it--and was able to diagnose my problem, suggest a course of treatment (6 weeks), and then follow through with said treatment. By the end, as she said, I was as good as gold. Boy, was it worth it! Though uncomfortable to talk about, much less write about, it is worth getting the word out there. If you have painful intercourse, especially after birth or other trauma, the treatment may be as simple as Physical Therapy (with Heather, of course). I highly recommend her.

-- Fritzette H., 3/24/16 via Yelp!

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